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- Genetic_Alliance abstract "Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations. They aim to advance genetic research agendas toward health benefit by engaging a broad range of stakeholders, including healthcare providers, researchers, industry professionals, public policy leaders, as well as individuals, families and communities. They create programs using a collaborative approach, and aim to increase efficiency and reduce obstacles in genetic research, while ensuring that voices from the involved disease communities are heard. They also promote public policies to advance healthcare. Genetic Alliance provides technical support and informational resources to guide disease-specific advocacy organizations in being their own research advocates. They also maintain a biobank as a central storage facility for several organizations who otherwise would not have the infrastructure to maintain their own repository.Mission Statement:Genetic Alliance improves health through the authentic engagement of communities and individuals. We employ innovation through novel partnerships, connected consumers, and smart services.Genetic Alliance provides web-based interactive tools and resources for individuals including: Family history tracker (http://www.familyhealthhistory.org/) Searchable database for information on specific diseases with facts, current research findings, support groups, and other details (http://geneticalliance.org/diseaseinfosearch) Web-based guidance for helping individuals determine trustworthiness of information sources (http://www.trustortrash.org/) Forum for families to learn about and engage with healthcare providers about newborn screening, Baby's First Test (http://www.babysfirsttest.org)In addition, they provide and curate open source compilations of genetic and advocacy information (http://wikiadvocacy.org/index.php/Main_Page, and http://wikigenetics.org/index.php/Main_Page).".
- Genetic_Alliance foundingYear "1986".
- Genetic_Alliance keyPerson Chief_executive_officer.
- Genetic_Alliance keyPerson President.
- Genetic_Alliance keyPerson Sharon_F._Terry.
- Genetic_Alliance wikiPageExternalLink diseaseinfosearch.
- Genetic_Alliance wikiPageExternalLink diseaseinfosearch).
- Genetic_Alliance wikiPageExternalLink Main_Page.
- Genetic_Alliance wikiPageExternalLink Main_Page,.
- Genetic_Alliance wikiPageExternalLink Main_Page.
- Genetic_Alliance wikiPageExternalLink Main_Page)..
- Genetic_Alliance wikiPageExternalLink www.babysfirsttest.org.
- Genetic_Alliance wikiPageExternalLink www.babysfirsttest.org).
- Genetic_Alliance wikiPageExternalLink www.biobank.org.
- Genetic_Alliance wikiPageExternalLink www.familyhealthhistory.org.
- Genetic_Alliance wikiPageExternalLink ).
- Genetic_Alliance wikiPageExternalLink www.geneticalliance.org.
- Genetic_Alliance wikiPageExternalLink www.geneticalliance.org.
- Genetic_Alliance wikiPageExternalLink ga.
- Genetic_Alliance wikiPageExternalLink www.trustortrash.org.
- Genetic_Alliance wikiPageExternalLink ).
- Genetic_Alliance wikiPageExternalLink watch?v=U0ES0yDWryM.
- Genetic_Alliance wikiPageID "8110639".
- Genetic_Alliance wikiPageRevisionID "589554734".
- Genetic_Alliance focus "Genetic Alliance improves health through the authentic engagement of communities and individuals. We employ innovation through novel partnerships, connected consumers, and smart services.".
- Genetic_Alliance formerName "Alliance of Genetic Support Groups".
- Genetic_Alliance foundedDate "1986".
- Genetic_Alliance hasPhotoCollection Genetic_Alliance.
- Genetic_Alliance homepage www.geneticalliance.org.
- Genetic_Alliance keyPeople "Sharon F. Terry, President and Chief Executive Officer".
- Genetic_Alliance nonProfitLogo Genetic_Alliance_official_logo.
- Genetic_Alliance nonProfitName "Genetic Alliance".
- Genetic_Alliance nonProfitSlogan ""Advocacy, Education, and Empowerment"".
- Genetic_Alliance nonProfitType 501(c)_organization.
- Genetic_Alliance nonProfitType Charitable_organization.
- Genetic_Alliance taxId "521571905".
- Genetic_Alliance subject Category:Biobank_organizations.
- Genetic_Alliance subject Category:Medical_and_health_organizations_by_medical_condition.
- Genetic_Alliance type Abstraction100002137.
- Genetic_Alliance type BiobankOrganizations.
- Genetic_Alliance type Group100031264.
- Genetic_Alliance type Organization108008335.
- Genetic_Alliance type SocialGroup107950920.
- Genetic_Alliance type YagoLegalActor.
- Genetic_Alliance type YagoLegalActorGeo.
- Genetic_Alliance type YagoPermanentlyLocatedEntity.
- Genetic_Alliance type Agent.
- Genetic_Alliance type Non-ProfitOrganisation.
- Genetic_Alliance type Organisation.
- Genetic_Alliance type Organization.
- Genetic_Alliance type Agent.
- Genetic_Alliance type SocialPerson.
- Genetic_Alliance type Thing.
- Genetic_Alliance comment "Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations.".
- Genetic_Alliance label "Genetic Alliance".
- Genetic_Alliance sameAs m.026rwts.
- Genetic_Alliance sameAs Q5532861.
- Genetic_Alliance sameAs Q5532861.
- Genetic_Alliance sameAs Genetic_Alliance.
- Genetic_Alliance wasDerivedFrom Genetic_Alliance?oldid=589554734.
- Genetic_Alliance homepage www.geneticalliance.org.
- Genetic_Alliance isPrimaryTopicOf Genetic_Alliance.
- Genetic_Alliance name "Genetic Alliance".