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- 2008033831 contributor B11111670.
- 2008033831 created "2009.".
- 2008033831 date "2009".
- 2008033831 date "2009.".
- 2008033831 dateCopyrighted "2009.".
- 2008033831 description "Fair distribution of newborn screening costs and benefits / Mary Ann Baily -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine De Mars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.] -- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen J. Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.".
- 2008033831 description "Includes bibliographical references and index.".
- 2008033831 extent "xvi, 354 p. ;".
- 2008033831 identifier "0801891515".
- 2008033831 identifier "9780801891519 (hardcover : alk. paper)".
- 2008033831 identifier 2008033831-b.html.
- 2008033831 identifier 2008033831-d.html.
- 2008033831 identifier 2008033831.html.
- 2008033831 issued "2009".
- 2008033831 issued "2009.".
- 2008033831 language "eng".
- 2008033831 publisher "Baltimore : Johns Hopkins University Press,".
- 2008033831 subject "618.92/0042 22".
- 2008033831 subject "Genetic Diseases, Inborn diagnosis.".
- 2008033831 subject "Genetic Screening ethics.".
- 2008033831 subject "Genetic disorders Diagnosis Moral and ethical aspects.".
- 2008033831 subject "Genetic screening Moral and ethical aspects.".
- 2008033831 subject "Health Policy.".
- 2008033831 subject "Infant, Newborn.".
- 2008033831 subject "Neonatal Screening ethics.".
- 2008033831 subject "Newborn infants Diseases Diagnosis Moral and ethical aspects.".
- 2008033831 subject "RJ255.6.D55 E84 2009".
- 2008033831 subject "WS 200 E84 2009".
- 2008033831 tableOfContents "Fair distribution of newborn screening costs and benefits / Mary Ann Baily -- Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse -- An advocate's perspective on newborn screening policy / Jannine De Mars Cody -- Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross -- Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton -- State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen -- Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell -- The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.] -- What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.] -- Research for newborn screening : developing a national framework / Jeffrey R. Botkin -- Ethical and policy issues involving research with newborn screening blood samples / Karen J. Maschke -- Parental permission for research in newborn screening / Jeffrey R. Botkin -- Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin -- Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond -- What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.".
- 2008033831 title "Ethics and newborn genetic screening : new technologies, new challenges / edited by Mary Ann Baily and Thomas H. Murray.".
- 2008033831 type "text".