Matches in Ghent University Academic Bibliography for { <https://biblio.ugent.be/publication/01J4M22FD2QMCC4MWNVGPXH8WZ> ?p ?o. }
Showing items 1 to 26 of
26
with 100 items per page.
- 01J4M22FD2QMCC4MWNVGPXH8WZ classification C3.
- 01J4M22FD2QMCC4MWNVGPXH8WZ date "2022".
- 01J4M22FD2QMCC4MWNVGPXH8WZ language "eng".
- 01J4M22FD2QMCC4MWNVGPXH8WZ type conference.
- 01J4M22FD2QMCC4MWNVGPXH8WZ hasPart 01J8049WKMPV4MR84JK0TV6CW3.pdf.
- 01J4M22FD2QMCC4MWNVGPXH8WZ subject "Medicine and Health Sciences".
- 01J4M22FD2QMCC4MWNVGPXH8WZ doi "10.1016/j.jid.2022.09.432".
- 01J4M22FD2QMCC4MWNVGPXH8WZ issn "0022-202X".
- 01J4M22FD2QMCC4MWNVGPXH8WZ issn "1523-1747".
- 01J4M22FD2QMCC4MWNVGPXH8WZ issue "12, Supplement".
- 01J4M22FD2QMCC4MWNVGPXH8WZ presentedAt urn:uuid:faa17625-f48f-4227-88c4-c4821ae52745.
- 01J4M22FD2QMCC4MWNVGPXH8WZ volume "142".
- 01J4M22FD2QMCC4MWNVGPXH8WZ abstract "Psoriasis is a chronic skin disease with large impact on quality of life and comorbidities such as depression and cardio-vascular disease. A holistic approach of this disease, for which there is no cure, is needed. A nurse specialist (NS) could play a valuable role in psoriasis care but not much is known about psoriasis patients their needs and expectations towards such NS. We aimed to explore psoriasis patients their needs and expectations in care, and more specifically towards NS. Data was collected through semi-structured interviews with as topics experiences related to care and treatment selection. The data collection and analysis took place through a cyclical process. Fourteen interviews were conducted (October2020-April2021) in nine men and five women. The majority (n=9) received standard care, the remaining participants (n=5) received specialized care. Patients experienced frustrations with care, they lacked psychological support and having the feeling being understood by their HCP. Treatments were considered time-consuming, with often inadequate results. Patients concluded they should learn to live with the disease and took up a passive role in their management. In a subgroup we identified a turning point: after receiving information about available treatments, they experienced hope and increased self-management. These patients perceived shared-decision making(SDM) as crucial. Although most patients did not encounter NS, they showed a neutral to positive attitude towards them. Although the benefits of SDM are known and confirmed in this study, there is still a gap with clinical practice. NS could be in the right position to inform patients about treatment options. At the same time NS can address psychosocial and lifestyle issues. NS could fill important gaps in current psoriasis care. Further research is recommended to detect which roles of NS improve patients outcomes.".
- 01J4M22FD2QMCC4MWNVGPXH8WZ author 3C952B94-DF17-11E9-A000-7D5A5707D3EF.
- 01J4M22FD2QMCC4MWNVGPXH8WZ author D09955F2-49D2-11E9-BD2E-4D9B5607D3EF.
- 01J4M22FD2QMCC4MWNVGPXH8WZ author F13FF90C-0E1B-11E9-8068-85FF5607D3EF.
- 01J4M22FD2QMCC4MWNVGPXH8WZ author F4F50E9A-F0ED-11E1-A9DE-61C894A0A6B4.
- 01J4M22FD2QMCC4MWNVGPXH8WZ author F702A1AC-F0ED-11E1-A9DE-61C894A0A6B4.
- 01J4M22FD2QMCC4MWNVGPXH8WZ dateCreated "2024-08-06T14:39:12Z".
- 01J4M22FD2QMCC4MWNVGPXH8WZ dateModified "2024-11-28T00:10:22Z".
- 01J4M22FD2QMCC4MWNVGPXH8WZ name "Filling the gap in psoriasis care : a qualitative study about patients’ needs & expectations and exploring the role of a psoriasis nurse specialist".
- 01J4M22FD2QMCC4MWNVGPXH8WZ pagination urn:uuid:7a84b405-7a42-414b-9d14-d319eb347bba.
- 01J4M22FD2QMCC4MWNVGPXH8WZ sameAs LU-01J4M22FD2QMCC4MWNVGPXH8WZ.
- 01J4M22FD2QMCC4MWNVGPXH8WZ sourceOrganization urn:uuid:60325eb2-fa79-4b40-9c0e-9d46607c7e4a.
- 01J4M22FD2QMCC4MWNVGPXH8WZ sourceOrganization urn:uuid:927e0e7b-001b-46f7-8b3b-9cdf0aab8982.
- 01J4M22FD2QMCC4MWNVGPXH8WZ type C3.