Matches in UGent Biblio for { <https://biblio.ugent.be/publication/2055925#aggregation> ?p ?o. }
Showing items 1 to 33 of
33
with 100 items per page.
- aggregation classification "A1".
- aggregation creator person.
- aggregation creator person.
- aggregation date "2012".
- aggregation format "application/pdf".
- aggregation hasFormat 2055925.bibtex.
- aggregation hasFormat 2055925.csv.
- aggregation hasFormat 2055925.dc.
- aggregation hasFormat 2055925.didl.
- aggregation hasFormat 2055925.doc.
- aggregation hasFormat 2055925.json.
- aggregation hasFormat 2055925.mets.
- aggregation hasFormat 2055925.mods.
- aggregation hasFormat 2055925.rdf.
- aggregation hasFormat 2055925.ris.
- aggregation hasFormat 2055925.txt.
- aggregation hasFormat 2055925.xls.
- aggregation hasFormat 2055925.yaml.
- aggregation isPartOf urn:issn:0964-2633.
- aggregation language "eng".
- aggregation rights "I have transferred the copyright for this publication to the publisher".
- aggregation subject "Social Sciences".
- aggregation title "The overall quality of my life as a sibling is all right, but of course, it could always be better': quality of life of siblings of children with intellectual disability: the siblings' perspectives".
- aggregation abstract "Background The concept of family quality of life is becoming increasingly important in family support programmes. This concept describes the quality of life of all family members and the family system as a whole, but only the opinion of the parents has been included. The opinion of the siblings has been incorporated in the opinions of the parents, although research has shown that there is discordance between parents' and siblings' reports. The principal goal of this study is to investigate how young siblings of children with intellectual disability define their quality of life as a sibling. Method As we were more concerned with understanding the experience of being a sibling from the siblings' own frame of reference, we opted for a qualitative research design and more specifically used in-depth, phenomenology-based interviews. Data were sorted by means of a process of continuously comparing the codes according to the principles of grounded theory. Results Siblings described the following nine domains as domains of sibling quality of life: joint activities, mutual understanding, private time, acceptance, forbearance, trust in well-being, exchanging experiences, social support and dealing with the outside world. Conclusions This study shows not only that siblings can define their quality of life, but also that this definition of sibling quality of life differs from the family quality of life concept. Therefore, it may be not only a valuable addition to the family quality of life concept but also an appropriate concept to describe siblings' experience.".
- aggregation authorList BK528260.
- aggregation endPage "101".
- aggregation issue "1".
- aggregation startPage "87".
- aggregation volume "56".
- aggregation aggregates 2055931.
- aggregation isDescribedBy 2055925.
- aggregation similarTo j.1365-2788.2011.01393.x.
- aggregation similarTo LU-2055925.