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catalog contributor b10648303.
catalog contributor b10648304.
catalog contributor b10648305.
catalog contributor b10648306.
catalog created "c1997.".
catalog date "1997".
catalog date "c1997.".
catalog dateCopyrighted "c1997.".
catalog description "DNA sampling: what would Osler say? / Victor A. McKusick -- International ethics guidelines and genetic epidemiology / Zbigniew Bankowski -- Introduction / Gerald Robertson -- The legal status of genetic material / Moe M. Litman -- Cabeat Venditor: protecting privacy and ownership interests in DNA / Patricia (Winnie) Roche -- Human DNA on trial in French law / Noel-Jean Mazen -- The status of human genetic material -- European approaches / Ruth Chadwick -- The status of human genetic material / Rapporteur: Timothy Caulfield -- Introduction / Bartha Maria Knoppers -- Choices, control, access -- the Canadian position / Bernard M. Dickens -- Differing perspectives on consent, choice and control / Robert F. Weir -- DNA sampling: Dutch and other European approaches to the issues of informed consent and confidentiality / Sjef Gevers and Els Olsthoorn-Heim -- Look-back: the duty to update genetic counselling / Joe T.R. Clarke and Peter N. Ray -- The genetic information superhighway: rules of the road for contacting relatives and recontacting former patients / Lori B. Andrews -- DNA sampling and duties to relatives -- looking back: European approaches / Maurice A.M. de Wachter -- Challenging the paradigm: stored tissue samples and access to genetic information / Rapporteur: Kathleen Cranley Glass.".
catalog description "Includes bibliographical references and index.".
catalog description "Introduction / Peter Lown -- Patenting of human genetic sequences in Canada / Randall W. Marusyk and Ariadni Athanassiadis -- The patentability of the human genome: a European perspective / Jean-Christophe Galloux -- Genomic patent and product development incentives / Rebecca S. Eisenberg -- Gene patents and drug development: the perspective from Merck / Christopher P. Austin and Jack L. Tribble -- Commercialization/Patnets / Rapporteur: Kathy Cherniawsky -- Introduction / T. Douglas Kinsella -- Ethical issues concerning current human DNA banking practices in Canada: three perspectives / Marja J. Verhoef, Raymond M. Lewkonia, T. Douglas Kinsella -- DNA sampling and banking: practices and procedures in the United States / Jean E. McEwen -- Human tissue banks in Europe / Octavi Quintana -- DNA sampling and banking: practices and procedures / Rapporteur: Beatrice Godard -- The virtual life of a genetic sample / Claude M. Laberge.".
catalog description "Introduction / Segolene Ayme -- Registries, record linkage, and research in genetics: protecting privacy / Patricia A. Baird -- Genetic studies in populations / Helena Kaariainen -- Ethics for complexity / David J. Roy, Guilia Kramar, Ghislaine Cleret de Langavent -- Genetic epidemiology: what "is" and what "ought" to be? / Rapporteur: Isabelle Panisset -- Introduction / Alain J. Pompidou -- Human genome diversity: where is the project now? / L. Luca Cavalli-Sforza -- The human genome diversity project: a perspective from cultural anthropology / Margaret Lock -- The ethics of the human genome diversity project: the North American regional committee's proposed model ethical protocol / Henry T. Greely -- Ethical concerns in genome diversity studies in developing countries / Ishwar C. Verma -- Bioethics and genetic diversity from the perspective of UNESCO and non-governmental organizations / Darryl R.J. Macer -- Genetic diversity -- a clash of world views? / Rapporteurs: Lori Luther and Marie Hirtle -- Introduction / Judith G. Hall -- Impact of French Legislation on neonatal screening / Jean-Louis Dhondt and Jean-Pierre Farriaux -- Prospective uses of DNA samples for research / Ellen Wright Clayton -- Use of stored samples from the Danish PKU register / Bent Norgaard-Pedersen -- Sampling issues in clinical impact of genetic testing and counselling studies / Elizabeth J. Thomson -- Technical and social aspects of B-thalassemia screening in Europe and developing countries / Antonio Cao -- Genetic screening and research revisited / Rapporteur: Marie Hirtle.".
catalog extent "xix, 455 p. ;".
catalog identifier "9041103619 (alk. paper)".
catalog issued "1997".
catalog issued "c1997.".
catalog language "eng".
catalog publisher "The Hague ; Boston : Kluwer Law International,".
catalog subject "1998 B-375".
catalog subject "344/.04196 21".
catalog subject "Bioethics Congresses.".
catalog subject "Bioethics Legislation.".
catalog subject "Genetics, Medical Congresses.".
catalog subject "Genetics, Medical Legislation.".
catalog subject "Human genetics Moral and ethical aspects Congresses.".
catalog subject "K3611.G46 A55 1996".
catalog subject "Medical genetics Law and legislation Congresses.".
catalog subject "QZ 32.4 H918 1997".
catalog tableOfContents "DNA sampling: what would Osler say? / Victor A. McKusick -- International ethics guidelines and genetic epidemiology / Zbigniew Bankowski -- Introduction / Gerald Robertson -- The legal status of genetic material / Moe M. Litman -- Cabeat Venditor: protecting privacy and ownership interests in DNA / Patricia (Winnie) Roche -- Human DNA on trial in French law / Noel-Jean Mazen -- The status of human genetic material -- European approaches / Ruth Chadwick -- The status of human genetic material / Rapporteur: Timothy Caulfield -- Introduction / Bartha Maria Knoppers -- Choices, control, access -- the Canadian position / Bernard M. Dickens -- Differing perspectives on consent, choice and control / Robert F. Weir -- DNA sampling: Dutch and other European approaches to the issues of informed consent and confidentiality / Sjef Gevers and Els Olsthoorn-Heim -- Look-back: the duty to update genetic counselling / Joe T.R. Clarke and Peter N. Ray -- The genetic information superhighway: rules of the road for contacting relatives and recontacting former patients / Lori B. Andrews -- DNA sampling and duties to relatives -- looking back: European approaches / Maurice A.M. de Wachter -- Challenging the paradigm: stored tissue samples and access to genetic information / Rapporteur: Kathleen Cranley Glass.".
catalog tableOfContents "Introduction / Peter Lown -- Patenting of human genetic sequences in Canada / Randall W. Marusyk and Ariadni Athanassiadis -- The patentability of the human genome: a European perspective / Jean-Christophe Galloux -- Genomic patent and product development incentives / Rebecca S. Eisenberg -- Gene patents and drug development: the perspective from Merck / Christopher P. Austin and Jack L. Tribble -- Commercialization/Patnets / Rapporteur: Kathy Cherniawsky -- Introduction / T. Douglas Kinsella -- Ethical issues concerning current human DNA banking practices in Canada: three perspectives / Marja J. Verhoef, Raymond M. Lewkonia, T. Douglas Kinsella -- DNA sampling and banking: practices and procedures in the United States / Jean E. McEwen -- Human tissue banks in Europe / Octavi Quintana -- DNA sampling and banking: practices and procedures / Rapporteur: Beatrice Godard -- The virtual life of a genetic sample / Claude M. Laberge.".
catalog tableOfContents "Introduction / Segolene Ayme -- Registries, record linkage, and research in genetics: protecting privacy / Patricia A. Baird -- Genetic studies in populations / Helena Kaariainen -- Ethics for complexity / David J. Roy, Guilia Kramar, Ghislaine Cleret de Langavent -- Genetic epidemiology: what "is" and what "ought" to be? / Rapporteur: Isabelle Panisset -- Introduction / Alain J. Pompidou -- Human genome diversity: where is the project now? / L. Luca Cavalli-Sforza -- The human genome diversity project: a perspective from cultural anthropology / Margaret Lock -- The ethics of the human genome diversity project: the North American regional committee's proposed model ethical protocol / Henry T. Greely -- Ethical concerns in genome diversity studies in developing countries / Ishwar C. Verma -- Bioethics and genetic diversity from the perspective of UNESCO and non-governmental organizations / Darryl R.J. Macer -- Genetic diversity -- a clash of world views? / Rapporteurs: Lori Luther and Marie Hirtle -- Introduction / Judith G. Hall -- Impact of French Legislation on neonatal screening / Jean-Louis Dhondt and Jean-Pierre Farriaux -- Prospective uses of DNA samples for research / Ellen Wright Clayton -- Use of stored samples from the Danish PKU register / Bent Norgaard-Pedersen -- Sampling issues in clinical impact of genetic testing and counselling studies / Elizabeth J. Thomson -- Technical and social aspects of B-thalassemia screening in Europe and developing countries / Antonio Cao -- Genetic screening and research revisited / Rapporteur: Marie Hirtle.".
catalog title "Human DNA : law and policy : international and comparative perspectives / editor, Bartha Maria Knoppers ; associate editors, Claude M. Laberge, Marie Hirtle.".
catalog type "Conference proceedings. fast".
catalog type "text".