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- catalog abstract ""Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live. This book shows how advocates have transformed health research, often - but not always - for the better." "Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which a quest for cures and improved therapies shapes advocacy work. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research." "Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates."--Jacket.".
- catalog contributor b12078024.
- catalog created "2001.".
- catalog date "2001".
- catalog date "2001.".
- catalog dateCopyrighted "2001.".
- catalog description ""Biomedical research today has a high public profile, largely because of patient advocacy.".
- catalog description ""Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which a quest for cures and improved therapies shapes advocacy work.".
- catalog description ""Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own.".
- catalog description "1. Patient Advocacy and the Changing Research Environment -- 2. Advocates on the Research Team -- Shaping and Assessing Science -- 3. Hope Versus Hypothesis Testing: Expanded Access to Experimental Interventions -- 4. Fairness in Allocating Government Research Funds -- 5. Public Participation in Allocating Government Research Funds -- 6. Advocates in Research Ethics Oversight: A Voice for the Public? -- 7. Advocacy for Accuracy in Research Reporting -- 8. Research Advocacy Today and Tomorrow.".
- catalog description "Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live.".
- catalog description "Includes bibliographical references (p. 173-206) and index.".
- catalog description "She argues that advocates should do more to promote ethical human studies and responsible media reporting about research."".
- catalog description "She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the.".
- catalog description "This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates."--Jacket.".
- catalog description "This book shows how advocates have transformed health research, often - but not always - for the better."".
- catalog extent "xii, 215 p. ;".
- catalog hasFormat "When science offers salvation.".
- catalog identifier "0195143132".
- catalog isFormatOf "When science offers salvation.".
- catalog issued "2001".
- catalog issued "2001.".
- catalog language "eng".
- catalog publisher "Oxford ; New York : Oxford University Press,".
- catalog relation "When science offers salvation.".
- catalog subject "174/.2 21".
- catalog subject "Bioethics.".
- catalog subject "Ethics, Medical.".
- catalog subject "Medical ethics.".
- catalog subject "National Institutes of Health (U.S.)".
- catalog subject "Patient Advocacy.".
- catalog subject "Patient advocacy.".
- catalog subject "R727.45 .D74 2001".
- catalog subject "Research Support as Topic organization & administration.".
- catalog subject "Research.".
- catalog subject "W 85 D773w 2001".
- catalog tableOfContents "1. Patient Advocacy and the Changing Research Environment -- 2. Advocates on the Research Team -- Shaping and Assessing Science -- 3. Hope Versus Hypothesis Testing: Expanded Access to Experimental Interventions -- 4. Fairness in Allocating Government Research Funds -- 5. Public Participation in Allocating Government Research Funds -- 6. Advocates in Research Ethics Oversight: A Voice for the Public? -- 7. Advocacy for Accuracy in Research Reporting -- 8. Research Advocacy Today and Tomorrow.".
- catalog title "When science offers salvation : patient advocacy and research ethics / Rebecca Dresser.".
- catalog type "text".