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- 2008003427 contributor B11074908.
- 2008003427 created "c2008.".
- 2008003427 date "2008".
- 2008003427 date "c2008.".
- 2008003427 dateCopyrighted "c2008.".
- 2008003427 description "Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.".
- 2008003427 description "Includes bibliographical references and index.".
- 2008003427 extent "vi, 257 p. ;".
- 2008003427 identifier "0754672557 (hardback : alk. paper)".
- 2008003427 identifier "9780754672555 (hardback : alk. paper)".
- 2008003427 identifier 2008003427.html.
- 2008003427 issued "2008".
- 2008003427 issued "c2008.".
- 2008003427 language "eng".
- 2008003427 publisher "Aldershot, England ; Burlington, VT : Ashgate Pub. Ltd.,".
- 2008003427 subject "174.2 22".
- 2008003427 subject "2008 N-818".
- 2008003427 subject "Confidentiality.".
- 2008003427 subject "Databases, Genetic ethics.".
- 2008003427 subject "Databases, Genetic legislation & jurisprudence.".
- 2008003427 subject "Genetic Research ethics.".
- 2008003427 subject "Genetics, Population ethics.".
- 2008003427 subject "Genome, Human.".
- 2008003427 subject "Human genetics Databases Law and legislation.".
- 2008003427 subject "Human genetics Databases Moral and ethical aspects.".
- 2008003427 subject "QH438.7 .E836 2008".
- 2008003427 subject "QU 470 E835 2008".
- 2008003427 tableOfContents "Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.".
- 2008003427 title "Ethical issues in governing biobanks : global perspectives / edited by Bernice Elger ... [et al.].".
- 2008003427 type "text".